Lung Transplant Resources
Transplant Program Sites
Childrens Hospital Boston
Designed for Patients and Health-Care Professionals
Children's Hospital of Los Angeles
Designed for Patients and Health-Care Professionals
May be of particular interest for patients/families interested in living-related donor procedures.
Duke University Medical Center Lung Transplant Website
Designed for Patients and Health-Care Professionals
Henry Ford Health Systems Lung Transplant Website
Designed for Patients and Health-Care Professionals
Inova Health System Lung Transplant Website
Designed for Patients and Health-Care Professionals
Johns Hopkins Comprehensive Transplant Center
Designed for Patients and Health-Care Professionals
Mayo Clinic Lung Transplant Program Website
Designed for Patients and Health-Care Professionals
The Mount Sinai Lung Transplantation Program
Designed for Patients and Health-Care Professionals
New York-Presbyterian Hospital Transplantation Website
Designed for Patients and Health-Care Professionals
Temple University Hospital
Designed for Patients and Health-Care Professionals
University of Pennsylvania Lung Transplant Program
Designed for Patients and Health-Care Professionals
University Health System San Antonio
Designed for Patients and Health-Care Professionals
University of Michigan Transplant Center
Designed for Patients and Health-Care Professionals
Lung Transplant-Related Web Sites
Children's Organ Transplant Association
Designed for Patients and Families
Organization provides fund-raising assistance for anyone who needs a transplant.
International Society for Heart and Lung Transplantation
Designed for Clinicians
Second Wind Lung Transplant Association Website
Designed for Patients
Patient-run organization that provides information on lung transplantation for patients (and their families) who have had a transplant or who are waiting to have a transplant.
We've Been There
Designed for Patients (under age 35) who are on the waiting list
Interactive Web site dedicated to younger patients on the lung transplant waiting list. Visits by transplant recipients to homes of an individual on the waiting list can be arranged.
Solid Organ Transplant-Related Web Sites
American Society of Transplantation Patient Education
Designed for Patients
Contains informational brochures in English and Spanish.
National Foundation for Transplants Website
Designed for Patients and Health-Care Professionals
Organization that offers health-care and financial support services for transplant candidates, recipients and families.
National Transplant Assistance Fund (NTAF) Website
Designed for Patients and Case Managers
Organization whose mission is to help raise funds for transplant and catastrophic injury patients by providing support, education, and expertise.
Scientific Registry of Transplant Recipients
Designed for Patients and Health-Care Professionals
Provides center-specific volume and outcomes.
TransWeb
Designed for Patients and Health-Care Professionals
TRIO
Designed for Patients
International organization committed to improving the quality of life for transplant candidates, recipients, their families, and the families of organ and tissue donors.
United Network for Organ Sharing
Designed for Patients and Health-Care Professionals
Resource for transplant center listings, center-specific and national statistics, research news, and policy information.
Disease-Specific Web Sites
Alpha-1 Association
Designed for Patients with alpha-1 antitrypsin deficiency
Coalition for Pulmonary Fibrosis
Designed for Patients and Health-Care Professionals
Cystic Fibrosis Foundation
Designed for Patients
EFFORTS (Emphysema Foundation For Our Right To Survive)
Patient Group Formed by Patients for Patients
Pulmonary Hypertension Association
Designed for Patients and Health-Care Professionals
Pulmonary Hypertension Central
Designed for Patients
Sarcoid Networking Association
Designed for Patients
Organization formed to educate individuals, provide information, and heighten public awareness about sarcoidosis.
Sarcoidosis Online
Designed for Patients
Provides a physician list, support group database, online newsletter, and a patient-to-patient message forum.
The LAM Foundation
Designed for Patients and Health-Care Professionals
Provides support and education to women with Lymphangioleiomyomatosis (LAM)
Organ Donation & Miscellaneous Websites
Coalition on Donation (English)
Designed for Patients and Health-Care Professionals
Organization dedicated to educating the public about organ and tissue donation.
Coalition on Donation (Spanish)
Designed for Patients and Health-Care Professionals
Medic Alert
Designed for Patients with any chronic health condition
Additional Information
ACCP Guide to Lung Transplantation
These links are provided as additional resources for our Members and other users. No endorsement by the American College of Chest Physicians is intended or implied.
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