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Home Care NetWorkPatient ResourcesThe National Emphysema/COPD Association (NECA): NECA Community News newsletter, patient/caregiver education, networking opportunities, information about research and clinical trials, advocacy information, what’s new in the marketplace, personal stories, insights, etc. The mission of the International Ventilator Users Network (IVUN) is to enhance the lives and independence of long-term home mechanical ventilation users through education, advocacy, research, and networking. IVUN’s “Take Charge, Not Chances” is a four-part publication that was funded by a grant from the Christopher Reeve Foundation. It is designed to help people who use ventilators in a medical emergency. Documents include:
The Web site for Respiratory Service at the Ottawa Hospital Rehabilitation Centre: There is a wealth of information here, including videos describing noninvasive respiratory techniques. Slide set of respiratory care protocols: This is a comprehensive presentation of the pathophysiology and management of respiratory issues in spinal cord injury and other neuromuscular diseases. Patient Instruction for Inhaled Devices
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